Sunday, 30 March 2025

Chemo is over....here's why

Yay! Wooooo! Well done me, I got through chemo.

Only I didn't, not really. 

My oncologist has stopped it half way through because (and these are her words not mine) the threat to my life is just too great to continue.

I should have finished the full 6 rounds of chemo by now but I've only managed to get to round 3. If I continued at this rate I would be looking at September before it ends. The trouble is my cells just can't hack it. My oncologist told me that it has been a long time since she has seen somebody, especially of my age, that has been so intolerant to the chemo. She had to make a choice between my safety now and my safety in the next 5 to 10 years. I guess I'd rather take 5 years over  3 months.

Why is it so dangerous? Well, normally a patient would have chemo and around 7 to 10 days later their neutrophils will drop. Neutrophils are the white blood cells that fight off bacterial infections. This is why chemo patients need to be careful with hygiene and to stay away from people who are sick. 
The neutrophils will then start to pick up again ready for the next round of chemo.
Sometimes, as was the case with me, a chemo patient will have daily injections in their stomach to increase the production of these white blood cells. 
2.5 - 7.0 is a normal white cell count. If the count drops below 1 it is classed as being neutropenic, meaning that you have no immune system. If you get a temperature if means you need to get to hospital straight away as you could have an infection. This is what happened to me after every chemo. My neutrophil count was 0 and with an infection meant I was neutropenic sepsis. I would then have to spend several days in isolation with heavy duty antibiotics going straight into my veins. What worried my consultant also was the fact that the daily injections in my stomach were not helping at all. They should have been producing white cells to prevent neutropenia, but were doing nothing. She even asked if I was having the injections, she thought maybe I wasn't bothering with them.
So that was one problem with my cells. The other problems were the red cells. Every chemo left me anaemic, which left me feeling very tired and breathless and also my platelets would be low, leaving me spotty and bruised. I also needed potassium infusions.
To put it bluntly I've been fucking ill. Whilst I was in hospital several people pointed out that I should enjoy the rest and not worry about housework. Now I didn't want to sound "not positive" so I didn't mention that I haven't done any housework since January because I've pretty much been in bed since then. I'm sure that sounds like heaven to people who are all working hard and longing for a day off.....believe me, it's no fun at all. My cells were taking longer to recover each time making the gaps between each chemo longer, dragging the whole process out. Even with transfusions.

So the decision was made. Chemo is over. I cried with relief when those words were said out loud but I also cried because part of me feels like such a failure. Part of me also feels like I did 3, pretty fucking amazing considering how ill it made me. 
I'm also scared. What if 3 isn't enough? What if the cancer returns in the next 5 years? Will I blame myself for not being able to get through the 6 rounds? Did I do enough? But then again I could have had the 6 rounds of chemo and the cancer come back anyway. Cancer is a bit of a bastard like that.

Now I know I've had a bit of a moan but I've always tried to keep my funny face on. Only my mum and Darren have seen the real me through this. I don't want people judging me and thinking that I'm not being very positive but here the truth comes out.

Since January life has been shit. I have cried every single day. Some days I've just had a little weep but other days I've been a heap on the floor sobbing my heart out. Some days in hospital when I've felt so ill, I've even begged for it to all end. I've wanted to die only to wake up the next day and not feel so bad again. 

I'm not giving up though and I never will and now chemo is over I'm already beginning to feel like the old me. I'm still very tired but I'm going for longer walks. I've not managed to dance all the way through a song yet, but I have danced. I've even signed myself up to do the Race for Life so all sponsors are gratefully received :)

I see the breast surgeon in a few days time to discuss about having a double mastectomy so there is still plenty of fighting to do yet, at least now I can do if with a smile on my face.

Sorry to Kat, Emily and George for not being fun mum these last few months. I will make it up to you. I promise x





I'd like to teach the world.....how to raise awareness properly!!

Oh here we go again!
The latest craze to sweep the internet comes in the form of young, big breasted women shoving a can of coke between their tits, taking a picture and claiming they are doing so to help raise awareness of breast cancer.
No love, you are raising penises and coke profits.
Does your picture include any facts on how to check your breasts for lumps or any other changes like dimples, discharge or rashes? Does your picture state that men can get breast cancer? Does your picture explain that you need to check your collarbone and armpits too?
Your pictures don't inspire me. They don't make me think "oh this is is a serious life threatening condition, I'd better check my own breasts"
And what about the ladies that have gone through gruelling chemotherapy and radiotherapy and double mastectomies. Do you think they appreciate seeing your wonderful, ample, heaving, healthy bosoms on display? 
Why is breast cancer ok to sexualise? It's not sexy. It's a killer. Thousands of women are killed every year because of this bastard disease.
We lose our hair, we lose our fingernails, we suffer excruciating bone pain and fatigue. We are put on medication that shoots us into menopause. Imagine being young, diagnosed with breast cancer and having to have your womb and ovaries removed because your chances of getting ovarian cancer increases to 80% and all before you've had children. 
I know I sound like a stick in the mud but I'm not going to apologise for that. Breast cancer almost killed me. I had a tough time with chemo, the doctors had to stop it early or I could have died. 
As I'm writing this I am thinking ok it's a bit of fun but raise your awareness with some facts. Share a link on how to check your breasts and how often you should check them. I feel mine once a month. 
I'm also thinking actually, do you know what, more power to us ladies that have gone through it. We should be proud of our bodies. 
Fuck it....if you can't beat 'em, join 'em but you'd all better go check your breasts straight away. I'll post a pic showing you how to with this blog!
My darling friend Leeane is also going to share her pic with us. She's had a double mastectomy.  Hopefully it will hit home. You can follow her on twitter. She's @Miss_LLC. She's all of the awesome. These pictures, these are 'The Real Thing'
Now go do some checking!
Peace, Love and Chocolate cake x 

THANK YOU ALL FROM THE BOTTOM OF MY FARTS

So I did it.
I made it to 40.
When I found that bastard lump in my right breast 3 years ago I honestly thought I wouldn't get to this milestone.
People have joked about me getting old but 40 is young. It's stupidly young....I have lots of living still to do.
Twitter and Facebook have left me feeling totally overwhelmed today. So many lovely and funny messages not to mention the many, many photos of Simon Le Bon. GOD I LOVE THAT MAN!! 
I wish I could reply to you all instantly but there are too many. I promise to get round to you at some stage. 
I want to thank you all so, so much though. Firstly for just putting up with my utter nonsense and moaning but also for keeping me company during the lonely hours. You don't know just how much you all mean to me and what you have helped me get through.
I want to thank my kids as well. Kathryn, Emily and George. They have gone through this crap with me and are totally amazing. Each one of them struggling but keeping it together. We are a team and I am so very proud of all of them. They are my reason for being. They make me laugh every single day. 
I also want to thank my wonderful, amazing boyfriend Bill or @Chap_Of_Steel as some of you may know him as. He is the reason that all my days are just that little bit brighter now. I have a future to look forward to. He makes me extremely happy and I can't imagine my life without him in it.
Although today is a MASSIVE celebration for me it's also an emotional day. Friends that I have made over the years who are no longer with us. Friends who have been told that the bullshit is back and have to go through all that treatment again and friends who just aren't going to get better. My thoughts are with them. If I had a magic wand I would use it.
Please check your breasts on a regular basis. I want you all to be safe and well. 


I'm going to celebrate the rest of my day now by getting suitably pissed and totally emotional.
I am 40.
I am young.
I flipping did it!! 

Peace, love and chocolate birthday cake xxx